Hi All,
I just had to share this bit of excitement. Some of you are aware that we have been doing what is called EEG Neurofeedback with (on?) Camron since the beginning of June. We are working with a neuro-psychologist, Dr. James Loong, who we feel we were guided to. Twice a day we attach electrodes to specific places on Camron’s scalp. The other end of the electrodes are plugged into Brainmaster equipment. Then he watches feedback on his computer monitor and learns to control the waves within his brain. He does not use a mouse, only his brain. (Sounds pretty far-out, I know.) But Dr. Loong told us that we could expect improvement in his seizures as one of the earliest improvements.
Well, Saturday night Camron had a seizure (the first since beginning EEG Neurofeedback). He has been having a seizure about once every 5-7 months. His last one was March 10. Historically, his seizures last anywhere from 10 minutes (most often) to 20-30 minutes. Once it lasted 60 minutes!! Afterwards, he is exhausted and his speech is slow and he’s generally wiped out. It takes quite a while to get his left side working again. Last night’s seizure was 60-90 SECONDS. He experienced
only some tingling in his left hand and foot and some lack of usage of his hand. But he was able to walk from the bathroom to his bed (we helped) and lie down. By then it was over. There was no residual effect. He just went back to the bathroom and finished getting ready for bed. And all this improvement goes with decreasing his seizure medication also.
We are so excited. Well, must go now. I must go thank my Heavenly Father for this blessing in our lives–and, knowing me, I’ll probably ask for more. This coming Saturday, August 23, is the tenth anniversary of Camron’s accident. We look forward to seeing what more benefits will come with the EEG Neurofeedback.
Credendo vides (by believing one sees),
Ann